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HelpGroups: Mutual Help through Support Groups

 Course Number  LWL220
 Objectives At the end of this course, you will  be equipped to 1. plan, 2. organize, 3. participate in, and 4. lead small help groups.
 Credit Hours and Fee  3.0 CE Credit Hours with a fee of $24.00
 Instructor  Rudolf Klimes, PhD (Indiana University), MPH (Johns Hopkins University); Adjunct Professor at Folsom Lake College, Folsom CA.

Welcome to this accredited 3-contact-hour Continuing Education  course with instant online processing and certification 24/7.  Study the course below, take the 12-question multiple-choice TEST, register and pay online. If you score 75% or above, you may print your CE certificate on your printer as soon as you finish. If you have difficulty printing your certificate, click here.. You may retake the test once.

A. Help Groups Overview

 

People diagnosed with cancer and their families face many challenges that may leave them feeling overwhelmed, afraid, and alone. It can be difficult to cope with these challenges or to talk to even the most supportive family members and friends. Often, support groups can help people affected by cancer feel less alone and can improve their ability to deal with the uncertainties and challenges that cancer brings. Support groups give people who are affected by similar diseases an opportunity to meet and discuss ways to cope with the illness.
  1. How can support groups help?

    People who have been diagnosed with cancer sometimes find they need assistance coping with the emotional as well as the practical aspects of their disease. In fact, attention to the emotional burden of cancer is sometimes part of a patient’s treatment plan. Cancer support groups are designed to provide a confidential atmosphere where cancer patients or cancer survivors can discuss the challenges that accompany the illness with others who may have experienced the same challenges. For example, people gather to discuss the emotional needs created by cancer, to exchange information about their disease—including practical problems such as managing side effects or returning to work after treatment—and to share their feelings. Support groups have helped thousands of people cope with these and similar situations.

  2. Can family members and friends participate in support groups?

    Family and friends are affected when cancer touches someone they love, and they may need help in dealing with stresses such as family disruptions, financial worries, and changing roles within relationships. To help meet these needs, some support groups are designed just for family members of people diagnosed with cancer; other groups encourage families and friends to participate along with the cancer patient or cancer survivor.

  3. How can people find support groups?

    Many organizations offer support groups for people diagnosed with cancer and their family members or friends. The NCI fact sheet National Organizations That Offer Services to People With Cancer and Their Families lists many cancer-concerned organizations that can provide information about support groups. This fact sheet is available at http://www.cancer.gov/cancertopics/factsheet/support/organizations on the Internet, or can be ordered from the Cancer Information Service at 1–800–4–CANCER (1–800–422–6237). Some of these organizations provide information on their Web sites about contacting support groups.

    Doctors, nurses, or hospital social workers who work with cancer patients may also have information about support groups, such as their location, size, type, and how often they meet. Most hospitals have social services departments that provide information about cancer support programs. Additionally, many newspapers carry a special health supplement containing information about where to find support groups.

  4. What types of support groups are available?

    Several kinds of support groups are available to meet the individual needs of people at all stages of cancer treatment, from diagnosis through followup care. Some groups are general cancer support groups, while more specialized groups may be for teens or young adults, for family members, or for people affected by a particular disease. Support groups may be led by a professional, such as a psychiatrist, psychologist, or social worker, or by cancer patients or survivors. In addition, support groups can vary in approach, size, and how often they meet. Many groups are free, but some require a fee (people can contact their health insurance company to find out whether their plan will cover the cost). It is important for people to find an atmosphere that is comfortable and meets their individual needs.

    Source: http://www.cancer.gov/cancertopics/factsheet/support/support-groups 

 

B: Help Groups Provide:

A support group can offer group members parenting and/or child care resource and referral information and explain personnel flexibilities available in their agencies that may help employees balance work and caregiving demands.

There also may be interest in starting a support group newsletter that could include newspaper and magazine articles on parenting, child care and children's issues, resource and referral information, and the date and time of the next support group meeting. A newsletter is especially helpful to members who temporarily lose contact with the group.

 

Support Group Leader

Because attendance at support group meetings may be sporadic at times, the consistent attendance of the group leader at the meetings can help to maintain the group. The group leader can be responsible for advertising future group meetings, arranging meeting space, and maintaining a current list of group members and their telephone numbers (see section on Meeting Time and Place.
 

If an employee assistance counselor or work and family specialist is not available to attend meetings on a regular basis, a leader may emerge from the group. This individual could be responsible for arranging the meetings or writing a newsletter, or these tasks could be shared by members on a rotating basis. Keep in mind that these are merely suggestions for a potential group leader. Each group will conduct itself differently.

 

Meeting Time and Place

Establish the time, place, and frequency of the support group meetings. Generally, employees like to meet at lunch time and will bring their lunches. Participants will decide how often they want to meet. Usually, a meeting room must be reserved in advance. Contact the agency building services office to find out how to reserve a room. Once a meeting time has been established, advertise the meeting at least two weeks in advance by placing announcements in a location where employees are certain to see them (bulletin boards or employee newsletters, for instance).

 

Goals/Purposes/Expectations

It is important to explore what members wish to accomplish at the meetings. Members should discuss the goals of the support group at the first gathering. The goals may change as new members are added or as problems or concerns change. These goals and purposes should be considered each time the group meets. Members also may wish to explain what they hope to gain from attending the meetings.

 

Confidentiality

Support group members must agree not to discuss the personal aspects of the meetings they attend. Certainly it is appropriate to share resource information outside the group, but the personal problems and concerns of members should remain private. This agreement of confidentiality should be stated at the first meeting and whenever newcomers attend a meeting.

 

Open or Closed Ended Group

Support groups can be open-ended or closed-ended. An open group accepts new members at any time while a closed group establishes a group but does not add new members for a specified period of time. The person that establishes the support group may make this decision or the members present at the first meeting may decide. An agency parenting support group may be better suited to an open-ended format since many employees experience parenting difficulties suddenly.

 

Resource and Referral Information

Mothers and fathers, whether they have small children, teenagers, or adult children, sometimes need assistance with the parenting problems they encounter. From finding quality child care to locating a math tutor for a ninth grader, parenting resources are available in the community. An employee assistance counselor or work and family specialist can often provide such information. However, these professionals may not be readily available to the group on a regular basis or may have limited access to such information.

Employees can call Child Care Aware, a toll-free telephone number (1-800-424-2246) operated by the National Association of Child Care Resource and Referral Agencies, to locate a nearby child care resource and referral agency.

 

Employees also can contact their county government human services office or a local hospital. Both organizations have extensive knowledge of available parenting resources.

The Office of Work/Life Programs can provide parenting support groups with copies of the Child Care Resources Handbook for Federal Employees. This publication is written for employers and mothers and fathers of small children and includes information on selecting day care and lists national organizations and resources that can be of assistance to mothers and fathers.

Source:

http://www.opm.gov/Employment_and_Benefits/WorkLife/OfficialDocuments/HandbooksGuides/Parents/index.asp 

 

C. Small Group Techniques

What are small group techniques?

Small groups have fewer than 20 or so members, making it easier for people to actively participate. They meet as small gatherings or as break-outs of large meetings and offer many opportunities for creative, flexible interchange of ideas and lively, meaningful participation.

Small group techniques help people participate freely and actively. They include special activities or formats that help interest and engage people. They foster active participation and steer participants toward constructive activities and dialogue. They help avoid complaint-oriented or conflict-driven sessions.

Small group techniques have certain basic characteristics:

 

  • they emphasize active participation and interaction;

     

  • they are usually run by a group leader or facilitator;

     

  • they have a task, theme, or goal;

     

  • they help reach consensus or develop priorities;

     

  • they gather a range of ideas, opinions, and concerns;

     

  • they are applied to either planning or project development;

     

  • in a breakout group, a small group task reflects the larger group agenda; and

     

  • breakout groups report back to the larger group.

    Specific small group techniques covered in this section include breakout groups, workshops, seminars, community juries, roundtables, study circles, conflict utilization opinionaires, decision science, delphi, dialogue facilitation, nominal group process, open space technology, Samoan circle, SWOT (strengths, weaknesses, opportunities, threats), synetics, and value analysis. Brainstorming is also used in small groups and is discussed as a separate technique. (See Brainstorming.)

    The definitions given here are generated from common practice and various materials. However, the techniques are far from standardized, and their names, conduct, and organization vary throughout the country. Some techniques overlap, or a "hybrid" meeting or process uses elements from each. The key to using them is to identify the element or structure that addresses the needs of the participants and the goals of the meeting.

    Why are small group techniques useful?

    They encourage broad participation and promote a sense of equality among members. Individuals speak and are heard. Participants ask questions and comment freely.

    Small group techniques foster interaction between participants. People are encouraged to speak frankly and openly. Ground rules, such as allowing only one person to speak at a time, help level the playing field between participants. Open and fair meeting processes promote give-and-take and interaction.

    They make a larger meeting more efficient and productive. Break-out groups use various techniques to address a specific issue. Many ideas are brought forth in small groups that might not surface in a large gathering. The larger gathering becomes more productive as break-out group findings on specific topics are reported and incorporated.

    Small group techniques foster dissemination of information to the broader community. Representatives meet in small sessions, cover issues, and report back to their constituents. The Portland, Oregon, Metro holds small group meetings in neighborhoods throughout the region. Spokespersons from each group report back to their peers, their elected officials, and other people about transit issues.

    These techniques usually make meetings more fun and interesting. The interactive nature of small group activities makes them spirited and engaging. People are willing to attend and participate when they know the session will be interesting and productive. The Dallas, Texas, Area Rapid Transit uses small group meetings to obtain candid reactions to innovative proposals. (See Improving Meeting Attendance.)

    Small group techniques offer a strategy for achieving a meeting goal. They help keep conversation on track or establish a step-by-step process for handling discussion. They help develop consensus or an action plan. To review elements of its 2020 long-range plan, the New Jersey Department of Transportation (NJDOT) sponsored four issues groups -- economic development, goods movement, and mobility and quality of life -- made up of key stakeholders.

    Are there special uses?

    Small group techniques are useful on controversial issues. They provide a non-threatening venue for all sides to express opinions and encourage mutual respect and constructive listening. They help reduce tension and defuse polarized groups.

    Small groups provide a forum for technical issues. Complex issues and concepts receive needed explanation and review, because each individual has time to absorb material and ask questions. Participants feel more confident in an analysis if they understand the technical issues and methods involved. The Connecticut DOT used small groups of participants organized by modal interest (i.e., those favoring transit and those favoring highway options) to develop alternatives for repair or replacement of a major bridge.

    Small group meetings can re-charge a participatory process with interesting and different ways of looking at a topic. Disenchanted group members are encouraged to rejoin if they see a way to achieve goals in a new and focused process. To critique and revise its public involvement program, the Central Puget Sound Regional Transit Authority (RTA) called together 60 com munity leaders and organized them into small groups to work on specific elements of the process.

    Participants affect the substance of plans and projects through small group work. The Southwestern Pennsylvania Regional Planning Commission used a small group to simplify its Trans portation Improvement Program for easier understanding by the public.

    How are small groups structured?

    The style, format, and organization of small group meetings vary. Some techniques are familiar and regularly used; others (frequently with fancy names) are less common. Some use innovative, creative group processes.

     

  • Breakout groups are subdivisions of a larger meeting to deal with specific issues. Small groups meet in separate areas -- corners of a large room or several smaller rooms. Each group appoints or elects a discussion leader, and each participant has a chance to express an opinion. Afterwards, groups report back to the large meeting. In neighborhood meet ings to discuss transit service issues, the Boston Transportation Department asked break out groups to identify priority issues. After each group reported, the larger meeting set priorities to report to the regional transit authority. In Washington, D.C., breakout groups from sub-regions worked within a larger meeting on the area’s long-range transportation plan and reported their area concerns to the larger group.

    Some small groups are established from the beginning, instead of being formed from a larger group. The format is designed specifically to accomplish the goals of the session.

     

  • Workshops are small groups that focus on one or more topics, working intensively over a short period of time. (See Conferences, Workshops, and Retreats.)

     

  • Seminars give participants an opportunity to learn about a particular topic and exchange information and viewpoints. A seminar usually focuses on a single topic. Often, a seminar offers a short presentation followed by discussion by a panel or participants. A seminar is distinctive in the high level of interest and knowledge participants bring to it. In Wilmington, Delaware, the Metropolitan Area Planning Coordinating Council began a larger meeting with a seminar with experts to stimulate discussion. Wisconsin DOT sponsored five issue-based seminars on land use, economic development, urban and rural issues, tourism, and freight shipping for its long-range transportation plan.

     

  • Community juries consist of individuals impaneled to hear testimony related to a specific issue. Jurors, chosen for their impartiality, hear reviews of an issue by neutral experts. The jury discusses and deliberates and subsequently issues its findings. Always non-binding and with no legal standing, the findings of such juries can pinpoint "fatal flaws" or gauge public reaction. The Minnesota DOT assembled a community jury to determine public attitudes toward congestion pricing as a traffic-reduction measure. The jury met for five days of hearings with more than 20 witnesses and voted in favor of reducing traffic but against congestion pricing. The jury then voted for increases in the gas tax and for allowing its use in funding transit improvements.

     

  • Roundtables are meetings, usually around a table, to examine an issue through discussion by all participants. Each participant is a stakeholder, so the issue is debated from many sides. Free discussion and diverse opinions are encouraged. Experts in a field can participate, as well as residents, business people, and interest groups. Roundtables are often breakout groups, focusing on one or more topics related to the entire issue or proj ect. Seminars and workshops often use a roundtable format, but what is distinctive about roundtables is their emphasis on thorough discussion of an issue. The Kansas DOT, Albany’s Capital District Transportation Committee, and the San Diego Association of Governments use roundtables in many projects and long-range planning efforts. The Central Puget Sound Regional Transit Authority held numerous roundtable discussions with community and business leaders to identify priorities for its regional transit plan.

     

  • Study circles hold a series of meetings to discuss critical issues. Members are assigned readings and other tasks between meetings. The process is very structured, often using study guides and discussion questions developed by an agency or a steering committee. Participants discuss each facet of the issue in detail. The same group meets periodically to investigate and debate the issue. Participants are appointed or self-selected. In Lima, Ohio, 40 churches with Caucasian, African American, and other members held study circles led by trained leaders to discuss ways to alleviate racial tensions. Study circles on race relations have been formed in Albuquerque, New Mexico; Baton Rouge and New Orleans, Louisiana; Portsmouth, Virginia; and Columbus, Ohio.

    How do people work within a small group?

    Problem-solving strategies are essential for small group accomplishment. Small groups need a specific format or process to achieve the goals of a meeting. These alphabetically listed tech niques can be used within the specific meeting structures cited above:

     

  • A conflict utilization opinionaire uses survey techniques to explore how individuals deal with conflict. It enables a group to use writing and discussion to deal with conflicts or controversies. Before addressing the project issue at hand, a group of 8 to 20 people meet and fill out a questionnaire or complete a writing task to express their attitudesabout conflict. They then discuss how staff or leaders should deal with it and suggest the best techniques for reaching consensus or understanding.

     

  • Decision science is a process of reaching consensus or formulating alternatives. It narrows the focus of discussion to the distinguishing characteristics of various options. A group begins by agreeing on elements that are not in dispute. The group agrees on as many points as possible; for example, "We all agree that we should minimize the impact on the agricultural properties," or "We think improved access to that abandoned factory will encourage economic development." Eventually the group reaches points on which they do not agree. By laying a foundation of mutually agreed-upon assumptions, decision science enables subsequent discussion to directly target unresolved issues. The technique requires a facilitator to develop the consensus items and organize discussion to resolve an issue or formulate a group of alternatives. The U.S. Fish and Wildlife Service used this technique to develop water management alternatives and explore structural versus opera tional solutions to water resource issues.

     

  • Delphi (also known as policy delphi) reaches consensus by asking a small group of experts to give advice. The results can generate further discussion at committee or public meetings. The delphi process begins when an agency distributes questionnaires to a panel of experts, whose responses are then tabulated. Results are sent back to the panelists, who reflect on their colleagues’ opinions and either alter their stances or provide reasons for holding to their own positions. This process is continued until basic concepts and ele ments of a project or plan are identified by a majority. The Atlanta Regional Commission (ARC) conducted a delphi process to define critical issues facing the region and to sug gest possibilities for the future. These findings were presented at ARC’s Outlook Confer ence in May 1992 to launch the VISION 2020 public process. Delphi is considered a survey technique as well as a way of involving small groups.

     

  • Dialogue facilitation lets participants speak on deeply-held personal beliefs about an issue. People hold conversations that are outside the bounds of the topic under discus sion. They can focus around a meal as an icebreaker. Here, individuals do not know which side of the main issue other people are on; they chat about families, interests, etc. Participants then discuss the main issue -- not as enemies or antagonists, but as indivi duals. Consensus is not expected. Rather, the goals are to open up communication and knowledge that differing opinions can be held. Using a principle of family therapy (you have to live together, so you might as well get along!), dialogue facilitation asks each person to participate in conversation.

     

  • A nominal group process is a term used for several different methods of identifying issues and priorities. One variation, employed by the Pennsylvania DOT, uses index cards for participants to register priority issues and other information; the cards are then tallied or analyzed. In another variation, participants generate ideas silently as individuals, and then list them as a group. They discuss what each means and thensilently and individually rank the ideas. Yet another method is to have experts discuss an issue with a small group and prepare suggestions for participants’ reactions. To develop priorities for watershed management, the New Jersey Water Resources Authority held successive small group sessions. In the first, after a brief presentation, experts and participants discussed the issue. In the next session, the experts presented in ballot form an array of personal concerns and opinions culled from the previous discussion. The group used the ballot to rank their collective views. The top quarter of the selected priorities formed the basis of a survey mailed to other people participating in the public involvement effort. The results helped to define the Watershed Management Plan.

     

  • Open space technology is a method of assigning meeting leadership. The Colorado DOT used this to manage breakout sessions of a large group. Participants introduced a topic or concern, wrote it on a card, and posted it on the wall. Examining the cards to choose a topic, group members signed their names on the card of their choice. Topics with the largest number of names were chosen for discussion groups. People who introduced the topic were responsible for leading a breakout session on it. The Colorado DOT chose issues from these sessions as part of a management review effort.

     

  • A Samoan circle derived its name very loosely, with only vague reference to the Pacific island group called Samoa. In fact, the formal structure began during a land use study in Chicago. Its purpose is to organize discussion of controversial issues or within large groups, instead of holding a free-for-all, no-holds-barred complaint session. It serves to identify stakeholders or to give priorities to actions to be taken or areas of agreement, although this is not a frequent used. A Samoan circle has no facilitator, chair, or mod erator. Participants are expected to maintain their own discipline. They gather in two concentric circles -- an inner circle with a table and four chairs, and an outer circle, with ample walking and aisle space. Everyone begins in the outer circle. The issue is pre sented, and discussion begins. Those most interested take chairs in the inner circle. Those less interested stay in the outer circle. All are able to move in or out of the center as the discussion flows or topics change. Each speaker makes a comment or asks a question. Speakers are not restricted in what they say or how they say it, but they must sit in the inner circle. Someone wishing to speak stands behind a chair; this signals those already in the circle to relinquish their chairs. No outside conversations are allowed. Comments are often recorded. Votes of opinions held by non-speakers are taken at the end, if desired. To close a meeting, empty seats are taken away one by one until there are no more chairs. The U.S. Army Corps of Engineers frequently uses the technique for both internal and public meetings to define priorities and stakeholders in project planning. The Village of Northfield, Illinois, used it to organize discussion of controversial pro posals for community development plans in a forum of 150 residents and officials. The technique was used in a meeting of FHWA officials and representatives of six Midwes tern states in discussing ways to improve working relationships around environmental protection concerns related to projects and planning.

     

  • SWOT (strengths, weaknesses, opportunities, threats) analysis takes an analytic approach to a concept or issue, identifying its strengths and weaknesses, along with opportunities it represents and threats to its success. Using those criteria, the group evaluates chances for success or effectiveness. Priorities are resolved by voting and reaching consensus within the group. The Iowa DOT used the technique in establishing the basis for its strategic plan. In a related technique, force field analysis, a group defines "helping" or "hindering" forces and their effects on the group’s objective or discussion.

     

  • Synetics re-charges a discussion by diverting it away from the issue being addressed. After discussing an unrelated topic, a group analyzes the dynamics of the side discussion to shed light on interpersonal relationships during discussion of the main topic.

     

  • Value analysis helps evaluate alternatives and their consequences in terms of values (say, a clean environment or governmental cost reductions) widely held in the community. This technique is frequently used in the utilities industry. Participants compute the attrac tiveness of each alternative, assign points for each value, then total them into composite scores. The technique shows what values are in conflict and what trade-offs might be possible. It is often used in siting decisions -- for example, by the Florida Power Corpora tion. It has been used by the Department of Energy in planning for a Tank Waste Reme diation System in Washington State and for the Santa Barbara County (California) Oil Transportation Plan. The Oregon DOT has used it to evaluate specific agency actions in relation to project alternatives’ analyses. The Ohio Housing Finance Agency used it to establish suburban integration incentives in Cleveland.

    How do agencies use the output?

    Agencies use results to refine plans or projects and move a process forward. Small groups generate information, ideas, and opinions. The Wisconsin DOT interviews small groups about preferences and viewpoints. Small groups are a way to achieve consensus.

    Small groups provide creative solutions or new ideas and scenarios. In a small group session in Boston’s Charlestown neighborhood, a local resident architect sketched out a bold idea that became the conceptual design for a major roadway reconstruction. Small groups foster further interaction between agencies and the public, often with a heightened level of trust.

    Who leads?

    Agency staff or outside experts lead small groups, but training is necessary to lead them effectively. Training overcomes individual worries about acting as a discussion leader.

    Community people also lead small groups. A neutral outside facilitator is important for small groups dealing with difficult issues. Some agencies offer training for local residents in leading discussions; others use outside experts. In Wilson, North Carolina, a local bank donated the time and expertise of several senior staff members to supplement agency managers. Working on the county’s strategic planning/visioning process, the bank staff helped facilitate breakout groups focused on specific transportation topics.

    Small groups usually have one or two leaders. Co-leaders are chosen from opposing sides of an issue to make sure all positions are adequately heard. This is important when no one group leader is viewed as neutral or objective on the issue being discussed.

    The choice of a leader depends on the complexity of the technique. In cases where a specialized technique is attempted, it is important to have an experienced leader.

    What do small group techniques cost?

    While actual monetary costs are minimal, staff time for preparation and management is sometimes considerable. The staff records events and reports back to a larger group or to the agency. A person is assigned the role of recorder to write down ideas on newsprint or blackboard. In some instances, agency staff facilitate. Triangle Transit Authority in North Carolina used staff members as facilitators of sub-groups analyzing transit potential and land use/development impacts of a new fixed guideway.

    Training staff or participants to run small groups is a factor. Training improves productivity and leads to fewer meetings, thus offsetting training costs to some extent. One alternative is retaining consultants to manage small group sessions. Also, with minimal training, participants can play other roles that help cut outside costs, acting as recorders or reporters or in other support roles. These roles reduce the need for staff effort.

    Meeting facilities become a cost when a neutral location is desired. To contain costs, publicly-owned facilities such as schools or colleges should be considered.

    Equipment, supplies, and refreshments usually have modest costs. Adequate provisions engender good will between a sponsoring agency and group participants.

    How are they organized?

    The format and organization of small group work need to be carefully conceived. Good preparation is necessary. The choice of technique must be targeted to the intended goals and topics of the meeting and whether the process is short- or long-term. The organization of the process should aim to achieve limited goals within a specified deadline. Policy-makers must beinformed of the process and its goals to assist in its support.

    Small group techniques must respond to both agency and participant needs. Agencies may want to solicit opinions, develop action items, and evaluate alternatives, while participants want to explore impacts, suggest various alternative actions, and make their voices heard. To remedy low attendance at large regional forums, the New Jersey DOT sent staff out to hear from certain populations about its long-range plan. Small groups met on Saturday afternoons in senior citizen centers, colleges, and center-city neighborhoods.

    Participants need to feel that a meeting is structured well enough to produce results. Audiovisual techniques -- video, overheads, displays, laptops -- are just as important in small groups as in large meetings, particularly when technical information or concepts are being dis cussed. (See Video Techniques.) They help engage participants, grab their attention, and estab lish a firm beginning. Meetings should be dynamic, fun, and interesting for participants. A method of summarizing, documenting, and reporting findings and agreements must be estab lished before a meeting. Even a large meeting that is not well-attended can produce results when participants work in small groups to focus on specific issues or tasks.

    The process must be fair and open. All participants need to have equal roles and be treated as peers. A group must be as inclusive of as many points of view as possible. Potential interests and stakeholders must be identified before assembling a small group, so that no one is ignored. If a large number of interests is represented, agencies often hold more than one small group session.

    A method for selecting leaders must be determined before a group meets -- whether leaders are to be appointed or chosen by the group. In some cases, it is appropriate to train small group leaders and clarify the responsibilities they are to undertake.

    Participants need to understand the process, their role, and the expected outcome of a meeting. As in a larger session, the context, purpose, and goal of a meeting should be carefully explained and understood. If the process is unusual, participants need an animated leader to explain it and carry it forward.

    Specialized and unusual techniques have specific guidelines for implementation that should be carefully explained to a group. Before beginning a meeting, it is essential to review the use of small groups, the proposed format, and the procedures, as well as possible issues that may arise and the results anticipated.

    Adequate facilities and supplies are important. Groups use easels with newsprint and markers to record ideas. Refreshments help create a comfortable, informal atmosphere. Equipment such as overhead projectors aids in reviewing a proposal. Breakout rooms are desirable for small-group sessions that are part of larger meetings. Supplies must be available for specific tech niques, such as cards for the open space technique.

    Implementation validates both the findings and the process. If follow-up is required, staff or appropriate parties make sure it is done. A small group that is part of a larger gathering should be linked back to it. Pennsylvania DOT held large public meetings for its statewide pedestrian and bicycle plan, breaking into smaller facilitated sessions. Participants identified critical design problems as they affect cyclists and pedestrians. The groups then offered possible solutions and reported their key findings to the large group.

    How are they used with other techniques?

    Small groups must be integrated into an overall public involvement strategy. A regular series of small group meetings ascertains participants’ views. Small group meetings are held periodically to update community groups and interested people on the progress of a planning effort or project development. Such meetings supplement larger group meetings by developing detailed information or exploring specific issues.

    Small groups adopt techniques available to larger groups, including charrettes, facilitation, visioning, and surveys. (See Charrettes; Facilitation; Visioning; Public Opinion Surveys.) Alter native dispute resolution techniques such as mediation are used when an impasse is reached. (See Negotiation and Mediation.)

    Small groups can meet by teleconferencing. The use of telecommunications brings people together without the need for extensive travel. (See Teleconferencing.)

    What are the drawbacks?

    Preparation takes time and extends a project or planning process. But small groups also save time in the long run if they provide opportunities for many people to participate and become familiar with a proposal’s its elements and impacts.

    Small groups require care and feeding. Space must be available and notices distributed promptly and to the right people. Staff often lead meetings or record their progress. Agencies sometimes provide a neutral site and refreshments for the group.

    The support of small groups requires a commitment from both the agency and the public. Both need to be assured that small group meetings are worthwhile, productive, and needed and that the results will be of use in the overall process of public involvement. It is sometimes appro priate to have agency officials participate in small groups or observe the process to demonstrate its utility.

    Are they flexible?

    Small groups are inherently flexible. They are used in a variety of situations, with a number of different organizing techniques, at various times in the process, at nearly any location, and with a wide variety of participants. They are organized to respond to specific issues and participants. Also, small groups meet just about anywhere. Many meet in public agency offices, schools, or universities; some in private business facilities. Staff members from the New Jersey DOT have met with small groups in private homes. (See Non-traditional Meeting Places and Events.)

    Small groups contribute to almost any larger process. The intended use of small groups must be identified early in a meeting process so interested people can comment. In a large meeting, breakout sessions should be identified on the agenda.

    When are they used most effectively?

    Small groups are effective at many different times in a process. They are effective at the beginning to alleviate polarization and early perceptual problems. When a process stalls, small groups re-start public involvement or move it forward. They are used before issues reach an impasse, or if participants are feeling excluded. They are used in either planning or project development to prioritize issues or work on action items.

  •  

    Source: http://www.fhwa.dot.gov/reports/pittd/smlgroup.htm

    D: Help Groups Clearinghouse

    Organization URL(s)

    info@selfhelpgroups.org
    selfhelpgroups.org  External Links Disclaimer Logo
     

    Other Contact Information

    Saint Clare's Health System
    25 Pocono Road
    Denville, NJ 07834-2995

    800-367-6274 (Voice - In-state only)
    973-326-6789 (Voice, National Helpline)
     

    Description

     

    Though its keyword-searchable online database, national helpline and Sourcebook, the American Self-Help Group Clearinghouse puts people in touch with any of over 1,100 national, international, model, and online self-help groups covering a wide range of illnesses, disabilities, addictions, bereavement, and stressful life situations. They also provide referrals to local self-help clearinghouses that exist in some states. The Clearinghouse provides information and consultation nationally to help people start new types of national self-help groups when none currently exist. Telephone services are available on weekdays from 8:30 a.m. to 5 p.m., EST.

    Online Resources

    Print Resources

     

    The Clearinghouse publishes the Self-Help Group Sourcebook, a listing of national group headquarters and model self-help groups, review of what self-help groups are, how they work, research studies done of groups, information on starting groups, and the availability of online computer support groups.

    Source: http://www.healthfinder.gov/orgs/HR1681.htm

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    E. Help Groups Research

     

    Consumer Self-Help

    Self-help groups are geared for mutual support, information, and growth. Self-help is based on the premise that people with a shared condition who come together can help themselves and each other to cope, with the two-way interaction of giving and receiving help considered advantageous. Self-help groups are peer led rather than professionally led.

    Organized self-help has a long history, with an estimated 2 to 3 percent of the general population involved in some self-help group at any one time (Borkman, 1991, 1997). Over the past several decades, people with serious mental illnesses have formed mutual assistance organizations to aid each other and to combat stigma. These range from small groups held in a member’s home to freestanding nonprofit organizations with paid staff and a range of programs. In general, however, the self-help empowerment trend does not appear to have reached the African-American, Native American, Hispanic/Latino, and Asian-American populations.

    As the number and variety of self-help groups has grown, so too has social science research on their benefits (Borkman, 1991). In general, participation in self-help groups has been found to lessen feelings of isolation, increase practical knowledge, and sustain coping efforts (Powell, 1994; Kurtz, 1997). Similarly, for people with schizophrenia or other mental illnesses, participation in self-help groups increases knowledge and enhances coping (Borkman, 1997; Trainor et al., 1997). Various orientations include replacing self-defeating thoughts and actions with wellness-promoting activities (Murray, 1996), improved vocational involvement (Kaufmann, 1995), social support and shared problem solving (Mowbray & Tan, 1993), and crisis respite (Mead, 1997). Such orientations are thought to contribute greatly to increased coping, empowerment, and realistic hope for the future. Additionally, some groups are tailored to meet the needs of consumers who are members of sexual minority groups, men, or those who also have substance disorders (Noordsy et al., 1996; Vogel et al., 1998).

    A number of controlled studies have demonstrated benefits for consumers participating in self-help. One study of the self-help group Recovery, Inc., found that leaders and members who were surveyed retrospectively reported fewer symptoms and fewer hospitalizations after joining the group than before. It also found the leaders’ reports of their psychological well-being to have been comparable to community controls (Galanter, 1988). In another study of 115 former mental patients, Luke (1989) found that those who continued to attend self-help meetings at least once per month over a period of 10 months were more likely to show improvement on psychological, interpersonal, or community adjustment measures than those who attended less frequently. Through a case study, which included focus groups and interviews, Lieberman and colleagues (1991) found a consumer-run support group to improve members’ self-confidence and self-esteem and to lead to fewer hospitalizations.

    In a survey of mental health self-help group leaders in New York State, respondents identified three positive outcomes that were directly related to their self-help group membership: greater self-esteem, more hopefulness about the future, and a greater sense of well-being. According to survey respondents, all of these positive changes led to fewer hospitalizations (Carpinello & Knight, 1993). A study of six self-help programs in several parts of the United States also reported on consumers’ perceptions of self-help programs (Chamberlin & Rogers, 1990). Although not nationally representative, consumers in this study expressed satisfaction with their self-help program, at which they spent an average of 15 hours per week. They reported that their participation helped them to solve problems and feel more in control of their lives.

    Source: http://www.surgeongeneral.gov/library/mentalhealth/chapter4/sec6.html

     

    Electronic support groups for breast carcinoma: a clinical trial of effectiveness.

    Department of Psychiatry, University of California at San Francisco, San Francisco, California 94118, USA. mal@itsa.ucs.edu

    BACKGROUND: A recent Pew Charitable Trust study found that 52,000,000 individuals used the Internet to obtain health/medical information. Clinical trials of face-to-face breast carcinoma support groups show evidence of 1) improvement in quality of life, 2) reduction of psychologic symptoms, 3) improvement in coping responses, and 4) a reduction in pain. To the authors' knowledge, a few studies published to date have investigated Internet-delivered electronic support groups (ESGs) for cancer. The most sophisticated is the Comprehensive Health Enhancement Support System (CHESS) program, which provides integrated information, referral, and a newsgroup-based social support program. However, to the authors' knowledge, no studies published to date have examined the impact of a breast carcinoma ESG in a clinical trial.

    METHODS: Sixty-seven women completed the initial baseline questionnaires, 32 of whom accepted the authors' invitation and began the groups. With regard to geographic location, 49% lived in rural/small towns, 41% lived in medium-sized cities, and 10% lived in large cities. Diagnostic stages of disease were: Stage I, 22%; Stage II, 56%; Stage III, 12%; and other forms, 10%. There were 4 intervention groups, of which 8 participants led by trained Wellness Community (TWC) (a national agency) leaders met for 1.5 hours once a week for 16 weeks. Student t tests for paired outcome data were computed using baseline and postgroup scores.

    RESULTS: The results of the current study indicated that breast carcinoma patients significantly reduced depression (Center for Epidemiologic Studies-Depression [CES-D] scale) and Reactions to Pain. They also demonstrated a trend toward increases on The Posttraumatic Growth Inventory (PTGI) in two subscales: New Possibilities and Spirituality. Counterintuitively, breast carcinoma patients appeared to demonstrate an increase in emotional suppression. Postinterview results indicated that approximately 67% of patients found the group to be beneficial. Those who withdrew from the groups (20%) demonstrated low scores in their ability to contain anxiety and appeared to be more likely to suppress their thoughts and feelings regarding their illness. CONCLUSIONS: The findings of the current study are encouraging, particularly because it was conducted through TWC, a national agency willing to make this type of intervention readily available at no cost. A limitation of the current study was the lack of randomization and a control group comparison. Although the authors were not able to demonstrate effectiveness without the addition of a control condition, the analysis of pregroup and postgroup outcomes suggests that a randomized trial is worthwhile. Women with a devastating disease will join and commit themselves to an online support group. In addition, because a large percentage of these women were from rural locations, this type of intervention may hold promise for those who have limited access to support groups. Copyright 2003 American Cancer Society

    PMID: 12569591 [PubMed - indexed for MEDLINE]

    Evaluation of an internet support group for women with primary breast cancer.

    Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, California 94305-5722, USA. winzel@stanford.edu

    BACKGROUND: Women with breast carcinoma commonly experience psychologic distress following their diagnosis. Women who participate in breast cancer support groups have reported significant reduction in their psychologic distress and pain and improvement in the quality of their lives. Web-based breast cancer social support groups are widely used, but little is known of their effectiveness. Preliminary evidence suggests that women benefit from their participation in web-based support groups. METHODS: Seventy-two women with primary breast carcinoma were assigned randomly to a 12-week, web-based, social support group (Bosom Buddies). The group was semistructured, moderated by a health care professional, and delivered in an asynchronous newsgroup format. RESULTS: The results indicate that a web-based support group can be useful in reducing depression and cancer-related trauma, as well as perceived stress, among women with primary breast carcinoma. The effect sizes ranged from 0.38 to 0.54. Participants perceived a variety of benefits and high satisfaction from their participation in the intervention CONCLUSIONS: This study demonstrated that the web-based program, Bosom Buddies, was effective in reducing participants' scores on depression, perceived stress, and cancer-related trauma measures. The effect size of the intervention was in the moderate range. Although web-based social support groups offer many advantages, this delivery mechanism presents a number of ethical issues that need to be addressed. Copyright 2003 American Cancer Society.

    PMID: 12599221 [PubMed - indexed for MEDLINE]

    http://www.ncbi.nlm.nih.gov/sites/entrez?Db=PubMed&Cmd=ShowDetailView&TermToSearch=12599221&ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstractPlus

     

    F. Help Group Resources

    www.supportworks.org     http://rarediseases.info.nih.gov/asp/resourhttp://health.dir.groups.yahoo.com/dir/Health___Wellness/Supportces/int_info.asp   http://health.dir.groups.yahoo.com/dir/Health___Wellness/    http://health.dir.groups.yahoo.com/dir/Health___Wellness/Support

    Lists of Support Groups: http://www.mentalhelp.net/selfhelp    http://www.geneticalliance.org    http://www.grohol.com/howto.htm

     

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